Tuesday, April 22, 2014

SOS: Save Our SCIENCE by engaging scientific and research communities to join w/advocates to #SaveRyanWhitePartD!

SOS-Save Our Science! We are working to engage the HIV research and scientific communities into Part D advocacy.

Ryan White Part D explicitly  mandates that its funded programs provide opportunities for women, infants, children, and youth to be voluntary participants in research of potential clinical benefit to individuals with HIV.  This unique mandate honors Part D's history as a maternal/pediatric HIV research demonstration project.  However, it also looks ahead toward a future cure, as many of the promising advances in HIV were birthed in the research realm.

Given that women, youth, and people of color are already severely underrepresented in domestic HIV clinical research, the changes to Part D could have a catastrophic effect on enrollment and retention of these groups.

With that in mind, we are strategically targeting various groups within the HIV research and HIV science communities in hopes that we can gain their support of our efforts to #SaveRyanWhitePartD.

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