One of our #SaveRyanWhitePartDinitiative members will be discussing Part D and the intersectionality of HIV and autism on a Blogtalk Radio Program tomorrow. We will be encouraging more signatures for our Change.org signature as well! Please listen in live or via podcast later if you'd like:
http://www.blogtalkradio.com/autism-womens-network/2014/04/05/national-autistic-and-aids-activism-with-mornike-onaiwu
Friday, April 4, 2014
Thanks for a GREAT call! :)
Thank you so much to those of you who participated in this morning's conference call. There was a lot of good information shared. We will be sending out a call summary and some action items later today.
However, in the interim, please note that we have created a Facebook Group: "Save Ryan White Part D!" It is temporarily an open group so that ppl will be able to easily join, but afterward we will convert it to a closed group.
Additionally, we will be compiling all of our resources from all of you, but just wanted to quickly mention and link to the resources already created by PWN-USA once again in the interim:
http://pwnusa.wordpress.com/take-action-2/
However, in the interim, please note that we have created a Facebook Group: "Save Ryan White Part D!" It is temporarily an open group so that ppl will be able to easily join, but afterward we will convert it to a closed group.
Additionally, we will be compiling all of our resources from all of you, but just wanted to quickly mention and link to the resources already created by PWN-USA once again in the interim:
http://pwnusa.wordpress.com/take-action-2/
PWN-USA to present on today's call!
In less than one hour, our conference Call to Action will begin!
Most of the Save Ryan White Part D Initiative Leadership will be present. This group includes:
Janet Kitchen, Founder of Positively U and a member of Positive Women's Network-USA;
Marsha Jones, Executive Director of The Afiya Center and member of the National Council to End AIDS;
Morénike Giwa Onaiwu, Founder of Advocacy Without Borders and Chair of the ACTG Global Community Advisory Board;
Leslie Raneri, Ryan White Planning Council Local Steering Committee and member of the International Maternal Pediatric Adolescent AIDS Clinical Trials Group Community Leadership (ICAB);
J. Raheem Harris, Founder of the Dallas Awareness + Action Group and Council to End AIDS-Southwest.
Additionally... :)
We are excited to announce that one of our speakers will be the Communications Director of the Positive Women's Network-USA. The Positive Women's Network has developed a myriad of advocacy resources that are available for public use, including evidence-based talking points and helpful statistics.
Also, the Positive Women's Network's 30 for 30 Campaign (a leadership network for HIV+ women) has been one of the forerunners of this movement.
We look forward to taking with you soon!
Most of the Save Ryan White Part D Initiative Leadership will be present. This group includes:
Janet Kitchen, Founder of Positively U and a member of Positive Women's Network-USA;
Marsha Jones, Executive Director of The Afiya Center and member of the National Council to End AIDS;
Morénike Giwa Onaiwu, Founder of Advocacy Without Borders and Chair of the ACTG Global Community Advisory Board;
Leslie Raneri, Ryan White Planning Council Local Steering Committee and member of the International Maternal Pediatric Adolescent AIDS Clinical Trials Group Community Leadership (ICAB);
J. Raheem Harris, Founder of the Dallas Awareness + Action Group and Council to End AIDS-Southwest.
Additionally... :)
We are excited to announce that one of our speakers will be the Communications Director of the Positive Women's Network-USA. The Positive Women's Network has developed a myriad of advocacy resources that are available for public use, including evidence-based talking points and helpful statistics.
Also, the Positive Women's Network's 30 for 30 Campaign (a leadership network for HIV+ women) has been one of the forerunners of this movement.
We look forward to taking with you soon!
Thursday, April 3, 2014
Thank you's!
We have SO many people who have helped us with our efforts to #SaveRyanWhitePartD. It's impossible to name them all. But we'd like to take a moment to thank a few special people:
The core group of the Save Ryan White Part D Initiative, consisting of Morénike Giwa Onaiwu, Leslie Raneri, Janet Kitchen, J. Raheem Harris, and Marsha Jones;
Some other members of the Save Ryan White Part D Initiative: Sister Mama Sonya, Cecilia Smith-Ross, Amana Turner;
Several Part D administrative agencies and CBO's, including The Resource Group, Bee Busy, our local Ryan White Planning Councils, and our local community advisory boards;
Many advocates and friends who have been spreading the word about this effort far and wide, including Kari Farmer-Coffman, Kevin Mahoney, Aaron Laxton, Venita Ray, Joy Noëlle Cameron, Gloria Sierra, Reachelian Ellison, Stephanie Deyo, Paul Klees, Dena Gray, Theresa Aldape, Beth Ryan, Kassiane Sibley, Sharon Davenport, Darcy Padgett (sorry, we know we are missing several people);
Greg Monk for his caring and watchful eye; in a sense, he is the catalyst for all of this;
The many organizations who have been meeting with public officials and lobbying on a national level. You are the head; we are proud to be your body! This list includes the AIDS Alliance for Women, Infants, Children, and Youth; Positive Women's Network US; the Elizabeth Glaser Pediatric AIDS Foundation; the American Academy of Pediatrics, the Well Project; the HIV/AIDS Medical Association; the Ryan White Medical Providers Coalition; AIDS United; the AIDS Institute; the UCSF Women's HIV Project, the National Black Women's HIV/AIDS Network headed by Barbara Joseph and other fantastic allies; Rise Up to HIV, the Autism Women's Network, the International Maternal Pediatric HIV/AIDS Clinical Trials Group community advocates, and others;
Change.org and it's compassionate, hardworking staff;
Hydeia Broadbent for being kind enough to tweet about our efforts! It is so humbling for such a renowned international HIV activist and humanitarian to take notice of our efforts;
Our supporters who have been following us on FB, Twitter, Google+, Blogspot, and in real life!
And of course 940 wonderful people all over the world (from SIX continents!) who have taken the time to sign and share our petition!
Thank you from the bottom of our hearts! You help us keep going. Together, we will #SaveRyanWhitePartD!
The core group of the Save Ryan White Part D Initiative, consisting of Morénike Giwa Onaiwu, Leslie Raneri, Janet Kitchen, J. Raheem Harris, and Marsha Jones;
Some other members of the Save Ryan White Part D Initiative: Sister Mama Sonya, Cecilia Smith-Ross, Amana Turner;
Several Part D administrative agencies and CBO's, including The Resource Group, Bee Busy, our local Ryan White Planning Councils, and our local community advisory boards;
Many advocates and friends who have been spreading the word about this effort far and wide, including Kari Farmer-Coffman, Kevin Mahoney, Aaron Laxton, Venita Ray, Joy Noëlle Cameron, Gloria Sierra, Reachelian Ellison, Stephanie Deyo, Paul Klees, Dena Gray, Theresa Aldape, Beth Ryan, Kassiane Sibley, Sharon Davenport, Darcy Padgett (sorry, we know we are missing several people);
Greg Monk for his caring and watchful eye; in a sense, he is the catalyst for all of this;
The many organizations who have been meeting with public officials and lobbying on a national level. You are the head; we are proud to be your body! This list includes the AIDS Alliance for Women, Infants, Children, and Youth; Positive Women's Network US; the Elizabeth Glaser Pediatric AIDS Foundation; the American Academy of Pediatrics, the Well Project; the HIV/AIDS Medical Association; the Ryan White Medical Providers Coalition; AIDS United; the AIDS Institute; the UCSF Women's HIV Project, the National Black Women's HIV/AIDS Network headed by Barbara Joseph and other fantastic allies; Rise Up to HIV, the Autism Women's Network, the International Maternal Pediatric HIV/AIDS Clinical Trials Group community advocates, and others;
Change.org and it's compassionate, hardworking staff;
Hydeia Broadbent for being kind enough to tweet about our efforts! It is so humbling for such a renowned international HIV activist and humanitarian to take notice of our efforts;
Our supporters who have been following us on FB, Twitter, Google+, Blogspot, and in real life!
And of course 940 wonderful people all over the world (from SIX continents!) who have taken the time to sign and share our petition!
Thank you from the bottom of our hearts! You help us keep going. Together, we will #SaveRyanWhitePartD!
Join us TOMORROW for a FREE Conference "Call to Action!"
A CALL TO ACTION!
Join us for a Save Ryan White Part D Call to Action Conference Call to link all of our efforts to help! Everyone is welcome--both individuals and organizations.
Conference Call Information
04/04/2014 from 10 am CST to 11 am CST
Conference Call Dial-in number: (605) 475-4000
Participant Access Code:
998769
Call Hosts: Save Ryan White Part D Initiative; The Resource Group
Conference Call Agenda
1. Greetings/Welcome
2. Introduction of Initiative leadership
3. Introduction of call participants
4. Quick summary of the Part D "problem"
5. Overview of community efforts that have already occurred
6. Overview of future community efforts and how you can help
7. Group discussion on additional community efforts that can be incorporated
8. Connecting all efforts: social media, sharing contact info, etc
9. Action items and assignment of roles
10. Helpful resources (from PWN, etc)
11. Questions/Comments/Next Steps
12. Adjourn
*Please email us at SaveRyanWhitePartD@gmail.com if you'd like us to send over the (optional) call materials for your review!
Join us for a Save Ryan White Part D Call to Action Conference Call to link all of our efforts to help! Everyone is welcome--both individuals and organizations.
Conference Call Information
04/04/2014 from 10 am CST to 11 am CST
Conference Call Dial-in number: (605) 475-4000
Participant Access Code:
998769
Call Hosts: Save Ryan White Part D Initiative; The Resource Group
Conference Call Agenda
1. Greetings/Welcome
2. Introduction of Initiative leadership
3. Introduction of call participants
4. Quick summary of the Part D "problem"
5. Overview of community efforts that have already occurred
6. Overview of future community efforts and how you can help
7. Group discussion on additional community efforts that can be incorporated
8. Connecting all efforts: social media, sharing contact info, etc
9. Action items and assignment of roles
10. Helpful resources (from PWN, etc)
11. Questions/Comments/Next Steps
12. Adjourn
*Please email us at SaveRyanWhitePartD@gmail.com if you'd like us to send over the (optional) call materials for your review!
Thursday, March 27, 2014
Press release for our FLASHBLOG!!!!
FOR IMMEDIATE RELEASE
March 27, 2014
Advocates to Protest
Elimination of HIV Healthcare for Poor Women and Children: “No HIV+ Women and
Children Left Behind”
Community advocates around the globe are astonished that the President’s fiscal year 2015 budget has
eliminated Ryan White Part D, the only
Ryan White program solely for US women, infants, children, youth, and families.
With its array of family-centered services, Part D has been instrumental in
retaining HIV+ individuals into care and aiding massive reduction of perinatal
HIV transmission in the US; annually serving over 50,000 individuals in 40
states and 2 territories.
In hopes of convincing the President and Congress to reverse
this decision, a global protest
entitled #SaveRyanWhitePartD Flash Blog:
“No HIV+ Women & Children Left Behind,” is planned on April 10, 2014 as an all day event.
The date of the protest is dually significant. In addition to coinciding with National Youth HIV &
AIDS Awareness Day (NYHAAD), the numbers 4/10 represent the dollar amount
of savings that was felt to be of greater value than the Part D program ($4
million), and the month that the elimination is slated to go into effect (the
2015 fiscal year begins in October – the 10th month of the year).
The #SaveRyanWhitePartD:
No HIV+ Women & Children Left Behind” Flash Blog protest on NYHAAD will be hosted by the Save Ryan White Part D
Initiative, a consortium of founding community organizations in Texas and
Florida. Save Ryan White Part D
has mobilized the community with a Change.org
petition that has obtained nearly 800 signatures and counting, a We
the People petition, and a variety of social media (Facebook, Twitter, Google+, and a public blog).
On NYHAAD, protestors from around the globe will participate
in a peaceful Flash Blog protest, submitting hundreds of essays,
poems, pictures, videos, and stories depicting the lives of the very communities
that stand to lose the most if this vital funding is cut (and supporters). A multi-media project entitled, “We
Exist” will also be unveiled.
Additional protest events, such as rallies, prayer vigils, and a webinar,
are being planned by consortium members.
We welcome more petition signatures as well as submissions
for the Flash Blog!
Contacts
Morénike Giwa Onaiwu, SaveRyanWhitePartD@gmail.com
Leslie Raneri, esperanzadelalma@gmail.com
Janet Kitchen, janetkitchen1@aol.com
J.Raheem Harris, JRHarris.DallasAAG@gmail.com
Marsha Jones, info@theafiyacenter.org
Save Ryan
White Part D Initiative Founding Agencies:
TX Black Women’s Initiative; 3
Sisters in the Spirit Theater Ministries; Campaign to End
AIDS-SW; The Afiya Center; Positive Playdates; Dallas
Awareness+Action Grp
###
Council to End AIDS Southwest Holds Rally to #SaveRyanWhitePartD!!!
J. Raheem Harris and other Council to End AIDS Southwest (C2EA Southwest) members gathered today at a Consumer Council Committee Meeting Dallas, Texas for a rally to demonstrate against proposed funding cuts to the Ryan White Part D which impacts women, infants, children and youth living with HIV/AIDS!
Their next scheduled meeting will be Monday, April 14th @ 12 Noon Hickman Conference Room, 2nd Floor. Dallas County Health & Human Services Building 2377 N. Stemmons Freeway, Dallas, TX.
Their next scheduled meeting will be Monday, April 14th @ 12 Noon Hickman Conference Room, 2nd Floor. Dallas County Health & Human Services Building 2377 N. Stemmons Freeway, Dallas, TX.
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